CSIE gives information and advice on the special educational needs of pre-school children and school pupils up to the age of 19. CSIE also supports parents' campaign groups, families and schools, and produces a range of booklets and information factsheets.
Legal
Educational & Medical Specialists
Why would I need legal help?
A legal adviser can be a great ally and help you get the best for your child. When it comes to dealing with your child’s medical care and education, they can be essential, especially if you want to appeal a decision by your Primary Care Trust (PCT), or if your local authority refuses a statement of special needs education request by your child’s school.
There are many places you can go for legal help, from free legal services to advocates and legal firms nationwide. Their advice can help you avoid making mistakes that cost you time, money and most importantly your sanity.
A few tips:
- Get everything emailed, acknowledged, time stamped and sent to your home address in hard copy.
- Get copies of all filed documentation about your child.
- Get a red pen and mark up on your calendar each statutory application deadline – it’s absolutely vital that you meet these deadlines. Missing them can work against your child’s case.
Cerebra supports children under 16 years who have a brain injury, neurological disorder, mental disability or developmental problem. They have lots of services including...
Parent support workers can offer face-to-face help with filling in forms and attending meetings.
The grant scheme funds up to 80% of the cost of equipment and services. E.g. That might be by paying for a touch screen monitor for a little boy who can’t use a mouse so he can do his homework and play computer games like his friends.
Help you with your legal issues
Sleep service
They have a holiday home in Pembrokeshire, South West Wales which gives families a chance to enjoy some respite with a free week long holiday.
Provide adapted equipment and tailor made solutions to problems when there's nothing on the market that meets your child's need.
Cerebra offer help to children and families with neurological conditions. They offer various services such as Sleep councilors, Grants, research, Bespoke design service and many more. All services are free to members.
Contact a Family
Gives advice and information to families with disabled or special needs children. The organisation also provides a range of factsheets and has a network of volunteer representatives.
Helpline: 0808 808 3555 (Freephone: Mon-Fri, 9.30am-4pm).
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DASH believes that Disability does not mean Inability, please look at the link for this group to see a huge variety of activities, help, advice and the chance to be part of something new. From an inclusive and adaptable Sunday youth club to team sports to days out, swimming sessions, reading and writing skills classes, line dancing, boccia the list goes on and on.
Equality Human Rights Commission (EHRC)
The Equality Human Rights Commission promotes and protects human rights. They work towards a modern Britain where everyone is treated with dignity and respect, and we all have an equal chance to succeed.
You can ask for advice and assistance from the EHRC if you think the local education authority is discriminating against your child because of disability.
England Tel: 0845 604 6610 (Mon-Fri, 8am-6pm)Wales Tel: 0845 604 8810 (Mon-Fri, 8am-6pm)Scotland Tel: 0845 604 5510 (Mon-Fri, 8am-6pm)Northern Ireland Tel: 028 90 890 890
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IPSEA is a national charity providing free legally based advice to families who have children with special educational needs. All their advice is given by trained volunteers. Tel: 0800 0184016 (Freephone)
Sense is a national charity that supports and campaigns for children and adults who are Deafblind. They were established from a family support group in 1955 by parents whose children were born with rubella, and the experience, skills and views of families remain central to their work. You can see how they have developed over almost 60 years on their website.
Sense offers high-quality, flexible services across the UK, using skilled staff and a dedicated network of volunteers. They work with a wide range of Deafblind and multi-sensory impaired people, as well as those who have a single-sensory impairment with additional needs.
They work with children, young people, adults and older people with a progressive sight and hearing loss, offering a range of housing, educational and leisure opportunities. They also offer support to all Deafblind people in both the congenital and acquired Deafblind communities, not just those who receive direct support and services from them.
Sensory Linq UK
Sensory Linq are specialists in the field of sensory impairment. They offer support, guidance and training to local authorities, social and health care agencies in order to help them meet statutory requirements. They can even give you advice on meeting the needs of children who are deafblind (have multisensory impairment) on request.
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SENAC is a charity in Northern Ireland providing an independent advice, information and advocacy service for parents of children and young people with special educational needs up to the age of 19 across a wide range of learning difficulties. Advice Line: 028 9079 5779

