If you feel that the DLA level or rate is incorrect for your child you may be able to challenge the initial decision.
The first step is to contact DWP to ask them to change their decision. Request the Mandatory Reconsideration paperwork and then unfortunately it’s more form filling.
However, the Citizens Advice have created a great guide including links to the forms to make it as easy as possible.
Trefoil House has a holiday grant fund for children/people to take a holiday where there is no funding available from elsewhere. They also provide grants for disabled sports equipment.
Well Child’s Helping Hands is a unique scheme offering practical support to sick children and their families through one off home improvement projects, such as a garden or bedroom makeover.
Newlife provides grants for essential equipment such as: pain relieving beds, wheelchairs, communication aids, and much more. They are also gateway to information, grants and care. They have a national Helpline which supports and informs families, whether they have just been told of their child’s disability or need help accessing local services. The Newlife Nurse Helpline is free, confidential and trusted. free Nurse Helpline phone number 0800 902 0095 (Monday to Friday 9.30am – 5.00pm (Wed 9.30am to 7pm) (answer phone facility outside normal hours)